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The organization partnered with the nonprofit National Center for Genome Resources (NCGR) to create an easy and affordable blood test that detects genetic mutations that cause Batten disease and 600-plus other terrible, rare childhood illnesses.
The Beyond Batten Disease Foundation is a 501(c)(3) nonprofit organization based in Austin, Texas.
Martin McGlynn, President and CEO commented, "In our press release on 2003 results issued in early April, I discussed our projected goal of filing the Company's first IND in the first quarter of 2005 for the treatment of Batten disease, a rare but fatal neurodegenerative disease.
Huhn was instrumental in the design of the protocol for the Company's clinical trial of its proprietary human neural stem cell product, HuCNS-SC[TM], in Batten disease now being conducted at Oregon Health & Science University in Portland, Oregon.
The Company has previously announced that it intends to file its first IND with the FDA to begin clinical trials in Batten Disease, a rare but fatal neurodegenerative disorder.
Phase I Trial of HuCNS-SC[TM] to Treat Batten Disease Advances
CHOP Researchers Delay Symptoms in Animal Model of Batten Disease --
The experiments are part of research to aid the treatment of Huntington's disease and Batten disease.
Later this month, it will donate $10,000 for the Children's Center at Our House; $10,000 for the Forensic Interview Program at the Children's Protection Center; $3,750 for the Food for Kids Program at the Arkansas Rice Depot; $2,500 for the Teach Grant Program at Economic Arkansas; $2,500 to the Beyond Batten Disease Foundation; and $2,500 to the Arkansas Tech Foundation.
Aidan was just three years old when he was diagnosed with one of the most severe forms of Batten disease - an incurable, inherited disorder that slowly shuts down the brain.
Kyran Richmond, nine, was diagnosed with Juvenile Batten Disease two years ago.