The organization partnered with the nonprofit National Center for Genome Resources (NCGR) to create an easy and affordable blood test that detects genetic mutations that cause Batten disease
and 600-plus other terrible, rare childhood illnesses.
The Beyond Batten Disease
Foundation is a 501(c)(3) nonprofit organization based in Austin, Texas.
SOURCE The National Center for Genome Resources; The Beyond Batten Disease
Martin McGlynn, President and CEO commented, "In our press release on 2003 results issued in early April, I discussed our projected goal of filing the Company's first IND in the first quarter of 2005 for the treatment of Batten disease
, a rare but fatal neurodegenerative disease.
Huhn was instrumental in the design of the protocol for the Company's clinical trial of its proprietary human neural stem cell product, HuCNS-SC[TM], in Batten disease
now being conducted at Oregon Health & Science University in Portland, Oregon.
The Company has previously announced that it intends to file its first IND with the FDA to begin clinical trials in Batten Disease
, a rare but fatal neurodegenerative disorder.
Phase I Trial of HuCNS-SC[TM] to Treat Batten Disease
CHOP Researchers Delay Symptoms in Animal Model of Batten Disease
The experiments are part of research to aid the treatment of Huntington's disease and Batten disease
Later this month, it will donate $10,000 for the Children's Center at Our House; $10,000 for the Forensic Interview Program at the Children's Protection Center; $3,750 for the Food for Kids Program at the Arkansas Rice Depot; $2,500 for the Teach Grant Program at Economic Arkansas; $2,500 to the Beyond Batten Disease
Foundation; and $2,500 to the Arkansas Tech Foundation.
Aidan was just three years old when he was diagnosed with one of the most severe forms of Batten disease
- an incurable, inherited disorder that slowly shuts down the brain.
Kyran Richmond, nine, was diagnosed with Juvenile Batten Disease
two years ago.