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The British Lung Foundation and Lindsay Whittle AM hosted a patient experience event on Tuesday at the National Assembly for Wales to mark IPF Week which runs until Saturday.
Unfortunately, medical knowledge about IPF is limited.
Transbronchial biopsy is generally not useful in the evaluation of patients with suspected IPF.
IPF is a disease of abnormal wound repair and lung remodeling rather than an exclusively inflammatory disease.
It is known, however, that equal numbers of men and women get the illness and that most cases of IPF are diagnosed when patients are between the ages of 40 and 70.
New results in people with IPF with severe lung impairment (NCT01619085) The first analysis evaluated treatment effect in people with IPF who had severe lung impairment (less than 50 percent forced vital capacity[FVC] predicted).
Angela said: "This report is really important in highlighting the desperate need for more support for people with IPF and their families.
The average IPF patient has lung volume loss of between 150-200mL per year, compared to a normal adult lung volume decline of approximately 50ml per year.
The etiology of acute exacerbation of IPF remains unknown, and occult viral infection has been proposed as one possible cause," said Harold Collard, MD, director of the Interstitial Lung Disease Program at the University of California, San Francisco.
Panelists said, however, that more data are needed to help identify which subsets of patients with IPF may benefit the most from treatment.
There are currently no FDA approved treatments for IPF, a progressive, debilitating and fatal disease that affects approximately 200,000 people in Europe and the United States combined.
Potential Clinical Utility of a Molecular Test that Distinguishes IPF from Other ILDs --