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Related to muscular dystrophy: multiple sclerosis, Duchenne muscular dystrophy
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A spokesperson for NHS England said: "NHS England does not currently routinely fund the use of Atularen (Translarna) for patients with Duchenne muscular dystrophy.
This data driven report contains over 30 links to online copies of actual muscular dystrophy deals and contract documents as submitted to the Securities Exchange Commission by companies and their partners, where available.
What has been really key is that as part of the research that has taken place we, the medical community and the patient community have learnt so much more about the natural history of Duchenne muscular dystrophy, so as well as helping the patients that this treatment is for, it is going to help all patients and new treatments because there is a better idea of how to assess them.
Mr Anderson, who is chair of the All Party Parliamentary Group for muscular dystrophy, said: "Muscular dystrophy is a relatively rare disease and there can be huge ignorance surrounding the condition, including from some GPs.
Following his father's diagnosis with Bethlem Myopathy - a rare form of Muscular Dystrophy that affects one in 250,000 people - Adam had a chance of being diagnosed.
The report by the All-Party Parliamentary Group for Muscular Dystrophy has been released following a catalogue of complaints from doctors and nurses, who outlined the problems patients faced and the gaps in the service.
The research team from University of Birmingham studied the key proteins involved in two types of muscular dystrophy (MD): the most severe MD form, Duchenne Muscular Dystrophy (DMD), and a more mild form, Limb Girdle MD (LGMD-1c) in the mouse model.
The health care project assistant has limb girdle muscular dystrophy which affects her legs and means she must sometimes use a wheelchair.
He's been bedridden almost his entire life with muscular dystrophy.
For people with the most common type of muscular dystrophy, one faulty gene wreaks devastating consequences.
I SPEND my life having luxury weekends and yet another hoves into view when I will board the liner Aurora to attend the Somerfield Group's annual ball, this year in aid of the Muscular Dystrophy Campaign.
But not Tim Gibbs, a 38- year old Cheshire pharmacist, who has just run the London Marathon to raise money for Muscular Dystrophy.

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